Flourishing together: research protocol for developing methods to better include disabled people's knowledge in health policy development

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dc.citation.issue1
dc.citation.volume22
dc.contributor.authorMartin RA
dc.contributor.authorBaker AP
dc.contributor.authorSmiler K
dc.contributor.authorMiddleton L
dc.contributor.authorHay-Smith J
dc.contributor.authorKayes N
dc.contributor.authorGrace C
dc.contributor.authorApiata TAM
dc.contributor.authorNunnerley JL
dc.contributor.authorBrown AE
dc.coverage.spatialEngland
dc.date.accessioned2024-10-25T02:05:42Z
dc.date.available2024-10-25T02:05:42Z
dc.date.issued2022-12
dc.description.abstractBACKGROUND: To positively impact the social determinants of health, disabled people need to contribute to policy planning and programme development. However, they report barriers to engaging meaningfully in consultation processes. Additionally, their recommendations may not be articulated in ways that policy planners can readily use. This gap contributes to health outcome inequities. Participatory co-production methods have the potential to improve policy responsiveness. This research will use innovative methods to generate tools for co-producing knowledge in health-related policy areas, empowering disabled people to articulate experience, expertise and insights promoting equitable health policy and programme development within Aotearoa New Zealand. To develop these methods, as an exemplar, we will partner with both tāngata whaikaha Māori and disabled people to co-produce policy recommendations around housing and home (kāinga)-developing a nuanced understanding of the contexts in which disabled people can access and maintain kāinga meeting their needs and aspirations. METHODS: Participatory co-production methods with disabled people, embedded within a realist methodological approach, will develop theories on how best to co-produce and effectively articulate knowledge to address equitable health-related policy and programme development-considering what works for whom under what conditions. Theory-building workshops (Phase 1) and qualitative surveys (Phase 2) will explore contexts and resources (i.e., at individual, social and environmental levels) supporting them to access and maintain kāinga that best meets their needs and aspirations. In Phase 3, a realist review with embedded co-production workshops will synthesise evidence and co-produce knowledge from published literature and non-published reports. Finally, in Phase 4, co-produced knowledge from all phases will be synthesised to develop two key research outputs: housing policy recommendations and innovative co-production methods and tools empowering disabled people to create, synthesise and articulate knowledge to planners of health-related policy. DISCUSSION: This research will develop participatory co-production methods and tools to support future creation, synthesis and articulation of the knowledge and experiences of disabled people, contributing to policies that positively impact their social determinants of health.
dc.description.confidentialfalse
dc.edition.editionDecember 2022
dc.format.pagination1252-
dc.identifier.author-urlhttps://www.ncbi.nlm.nih.gov/pubmed/36253852
dc.identifier.citationMartin RA, Baker AP, Smiler K, Middleton L, Hay-Smith J, Kayes N, Grace C, Apiata TAM, Nunnerley JL, Brown AE. (2022). Flourishing together: research protocol for developing methods to better include disabled people's knowledge in health policy development.. BMC Health Serv Res. 22. 1. (pp. 1252-).
dc.identifier.doi10.1186/s12913-022-08655-2
dc.identifier.eissn1472-6963
dc.identifier.elements-typejournal-article
dc.identifier.issn1472-6963
dc.identifier.number1252
dc.identifier.pii10.1186/s12913-022-08655-2
dc.identifier.urihttps://mro.massey.ac.nz/handle/10179/71850
dc.languageeng
dc.publisherBioMed Central Ltd
dc.publisher.urihttps://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-022-08655-2
dc.relation.isPartOfBMC Health Serv Res
dc.rights(c) 2022 The Author/s
dc.rightsCC BY 4.0
dc.rights.urihttps://creativecommons.org/licenses/by/4.0/
dc.subjectCo-production
dc.subjectDisability
dc.subjectHealth outcomes
dc.subjectHealth policy
dc.subjectHousing
dc.subjectParticipatory
dc.subjectPolicy planning
dc.subjectRealist research
dc.subjectDisabled Persons
dc.subjectHealth Policy
dc.subjectHumans
dc.subjectNative Hawaiian or Other Pacific Islander
dc.subjectNew Zealand
dc.subjectPolicy Making
dc.titleFlourishing together: research protocol for developing methods to better include disabled people's knowledge in health policy development
dc.typeJournal article
pubs.elements-id457339
pubs.organisational-groupOther
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