Browsing by Author "Chamberlain K"

Now showing 1 - 6 of 6
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    Accessing diagnosis and treatment: The experience of cancer as wrangling with the system
    (Elsevier B.V., 2024-06) Dew K; Chamberlain K; Egan R; Broom A; Dennett E; Cunningham C
    Long term cancer survival is increasingly prevalent, and the consequences are of sociological and clinical interest. In this paper we deploy the concept of wrangling to emphasise the everyday tussle of survivorship and processes of navigating pathways through what can be an unwelcoming environment. From 2020 to 2022 81 interviews were conducted with people, Māori and non-Māori, throughout Aotearoa New Zealand identified as exceptional cancer survivors, living with a diagnosis of cancer from four to 37 years. Categories of wrangling discussed by participants included wrangling with the public drug-buying agency in Aotearoa New Zealand, wrangling between private and public healthcare systems, subaltern wrangling and wrangling across regions. Wrangling could be driven by the person with the cancer diagnosis, undertaken on behalf of that person by others including family and health professionals, and undertaken by the community. We argue that for most people with long-term cancer survival wrangling is a social practice, but the capacity to succeed in that practice is dependent on a range of factors, including levels of economic, cultural, and social capital. The concept of wrangling provides a contrast to an overemphasis in the survivorship literature on cancer as an individual experience; one largely disconnected from the art and practice of managing (often unwieldy and flawed) systems of care.
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    Accessing primary healthcare during COVID-19: health messaging during lockdown
    (Taylor and Francis Group, 2022-03) Blake D; Thompson J; Chamberlain K; McGuigan K
    Accessing healthcare during a disaster matters for the well-being of people and communities. This article explores healthcare messaging about General Practitioner (GP) services for non-COVID-19 health concerns during the Level 4 lockdown in Te Papaioea (Palmerston North), Aotearoa New Zealand. Messaging from Government, media and local GP clinics were analysed to understand how people were advised to seek care for non-COVID-19 health concerns. We found inconsistencies in these communications, ranging from messages to not attend healthcare services because of possible COVID-19 surges, to messages with vague, or lack of, information. Government messages did include advice for seeking general healthcare, but this was largely rendered invisible due to the focus on ‘staying home, saving lives’. Media messaging was similarly influenced by these Government directives. Few GP clinics had websites, and few provided information about accessing general healthcare services. Clinics also lacked up-to-date telephone messages about seeking healthcare for non-COVID-19 symptoms and illnesses. All three sources neglected the cultural, social and contextual diversity of the local audience. We recommend that communication during disasters should be clear, concise and consistent. Further, GPs should be supported to have websites and telecommunication platforms. All communications should be inclusive and aim to reach diverse audiences.
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    Adolescent Dilemmas About Viewing Pornography and Their Efforts to Resolve Them
    (SAGE Publications, 2022-11-01) Vertongen R; Van Ommen C; Chamberlain K
    Concerns have been raised about how viewing Sexually Explicit Internet Material (SEIM) shapes adolescents’ understanding of sexual relationships and has potentially negative impacts. However, research frequently takes a narrow view of adolescent SEIM use and excludes their understandings. The present study explored how 13 participants, aged 14 to 15 years, made sense of their experiences with SEIM. In-depth individual interviews were conducted, and five dominant dilemmas faced by participants were abstracted using interpretive analysis. We discuss how these dilemmas were negotiated by adolescents using various strategies. The analysis provides new understandings on how adolescents interpret their SEIM experiences and highlight the limitations of understanding SEIM use solely through risk models. On a practical level, these findings can inform youth, parents and caregivers, and professionals as to how they might understand and help young people navigate the complex area of SEIM.
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    Disruption, discontinuity and a licence to live: Responding to cancer diagnoses.
    (John Wiley and Sons Ltd on behalf of Foundation for the Sociology of Health & Illness, 2024-05-30) Dew K; Chamberlain K; Egan R; Broom A; Dennett E; Cunningham C
    Although a diagnosis of a life-limiting cancer is likely to evoke emotions, such as fear, panic and anxiety, for some people it can also provide an opportunity to live life differently. This article is based on research undertaken in Aotearoa New Zealand on the topic of exceptional cancer trajectories. Eighty-one participants who had been identified as living with a cancer diagnosis longer than clinically expected were interviewed, along with 25 people identified by some of the participants as supporters in their journey. For some participants the diagnosis provided the opportunity to rethink their lives, to undertake lifestyle and consumption changes, to be culturally adventurous, to take up new skills, to quit work and to change relationships with others. The concepts of biographical disruption and posttraumatic growth are considered in relation to these accounts, and it is argued that the event of a cancer diagnosis can give license for people to breach social norms.
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    Innovating qualitative research methods: Proposals and possibilities
    (Elsevier Ltd, 2022-11) LaMarre A; Chamberlain K
    We reflect on the current state and growth of qualitative research in psychology alongside the development of publications, publication venues, and research societies for qualitative research that have facilitated that growth and enhanced interest in qualitative research within the discipline. We also argue that much contemporary qualitative research is formulaic in nature, frequently as a result of relying on checklists and guidelines in a misguided attempt to ensure methodological rigour. We argue the need for more innovation in qualitative research and showcase the range of articles accepted for this special issue on qualitative research innovation. We discuss these articles under four headings: Addressing challenges in a new era of qualitative research; Considering ethical practice; Dynamic practices of data collection; and Rethinking analytic practices. Our hope is that these articles excite readers' psychological imagination, leading them to engage with and take up the ideas and practices promoted by the articles, to diverge from prescribed methods and to journey into the unfamiliar and embrace innovation in their research.
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    Insight, hindsight & foresight: functional foods, probiotics & the consumer
    Boland MJ; Bunting H; Grigor J; Chamberlain K